I am Newly Diagnosed
A myeloma diagnosis comes with its own unique set of emotional hurdles and no one understands this better than another person living with myeloma.
Do you recall the day you heard the words ‘You have myeloma?’ I vividly recall that day in 2002 when I was told that I had an incurable disease I had never heard of and that I had three to five years to live. I remember being overwhelmed by feelings of fear, panic, dread, terror but above all a feeling of aloneness.
Co-Founder, Myeloma Canada
A myeloma diagnosis can feel overwhelming, but you are not alone. The apprehensions you may be experiencing are a normal part of coming to terms with your diagnosis. Watch the video below to hear from other patients and learn about available resources.
Although myeloma is an incurable disease, it is treatable and many patients go on to lead full lives after diagnosis. With increasing research and emerging treatments, the overall outlook for patients is steadily improving. To ensure that you get the most accurate information available about your diagnosis, be sure to question what you read, especially on the Internet. It is always a good idea to check the information against credible and up-to-date sources.
Now What?
After diagnosis, you’ll likely have several questions of your own. The following resources are available to support and help you get through the process of managing and coping with the disease, whether you’re a patient, a family member of a patient, or a friend.
Multiple Myeloma Patient Handbook
Designed to provide educational support to patients, caregivers, families and friends, this educational handbook gives you accurate and clear information on myeloma. Topics cover types of myeloma and their symptoms, how the disease is diagnose and the treatment options available in Canada.
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ADDITIONAL EDUCATIONAL RESOURCES
Talk to Someone: Find Support
Meet other patients, caregivers, and their families at a local myeloma support group near you. Support groups can help you cope with a myeloma diagnosis and provide important information about the disease and its treatment.
FIND A SUPPORT GROUP IN YOUR AREA
Speak to our Peer-to-peer Navigator
Debbie Basevitz, a retired nurse and caregiver of a myeloma patient, generously initiated a peer-to-peer program for patients and caregivers. The program is intended to provide practical advice, and help you better navigate the Canadian healthcare system.
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